The update from the last 3 treatments is all pretty good news. Since Gabi had the MRI in March we saw that her malformation of veins has significantly reduced. We still have a way to go, but we are making good progress. It's just not as fast as we would like it. Gabi is still as strong as ever! Every time we go to Colorado I am i impressed with her maturity. She is the model for the perfect patient, all the nurses love her and tell us how smart and adorable she is. She is very wise and will ask them how they are doing. She is so caring of others and so grateful for everyone around her. She makes sure that I let everyone know she is doing well and she has such an optimistic attitude about the progress in her recovery. She is excited when she can touch her lips together. She is excited about being able to play with Violet. She is excited to have both eyes open. She appreciates the smallest things that most of us take for granted. She only complains when something like pain or nausea becomes unbearable. This was the first treatment that she requested to order a meal in the hospital before she was discharged. It was funny to see her look at the menu and ask for the phone to order. Her order included, mashed potatoes and gravy, corn, green beans, chicken strips, and apple juice. She ate all of it! She is just amazing and I hope that I learn whatever it is that I am supposed to from this experience.
First pit stop at the "Best Truck Stop in the Nation" according to some TLC show...can't remember which one.
Violet was so excited to get out of her car seat! She was such a trooper staying in her car seat for hours and hours and hours. Poor thing! She is so sweet, I just hated having to put her back in so many times. It ends up being driving in the van for pretty much 3 days straight, and then when we are not in the car it's the hospital or the hotel where we don't let her crawl around...horrible.
Ben pretty much loves to drive and drive and drive....actually not, but I hate it too, so he ends up driving 80%-100% of the way. It's OK though because he has a hard time trusting all the others on the road when I am driving so it gives him more peace to just drive himself. I am good with that.
If driving to Colorado has taught me anything it's how to sleep in the car...FINALLY!! A talent I have been trying to learn for years!
Gabi has mastered the art of traveling. She is very low maintenance while traveling. All she needs is her music, Gatorade, a few snacks, and her tablet and she's good to go! Also she can fall right asleep, no problem!
This treatment she received 11ml of alcohol. Se felt quite well afterwards. Enough to order her first lunch after a treatment. She was so hungry she ordered chicken, potatoes and gravy, corn, green beans, Gatorade, apple juice, and a scoop of vanilla ice cream. Oh and before her food arrived she requested a purple Popsicle.
Mandy is one of Gabi's P.A's and she absolutely loves her. She thinks Mandy is the best! She has the best nurses and doctors! They take such good care of her.
Gabi was so excited when she woke up in recovery about being able to close her mouth and open her eyes. She gives us all more courage, she is amazing!
We love you Gabi Girl!
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